Thankful Mom Shares Her Daughter’s Medical Journey

December 2, 2009 at 2:56 pm 1 comment

Recently, Tracey contacted us with words of thanks to BC Children’s Hospital for helping her daughter, Jayda. We wanted to share her daughter’s story and Tracey’s words of thanks, as they can explain better than I, the wonderful work the caregivers are doing at BC Children’s Hospital to help diagnose and treat children, giving them the best possible quality of life.

Jayda was born after a rough pregnancy, a healthy baby at 37 weeks. 

For months and years after Jayda was born she struggled with what we always thought was childhood asthma. 

In the fall of 2007 Jayda began to experience episodes of vertigo, sever shortness of breath, exercise intolerance and nosebleeds.  I took her to a local children’s clinic where blood work was ordered.  Upon the results of the blood work, it was noticed that her haemoglobin levels were 174, much higher then normal. 

Armed with this information we were sent to a pediatrician who sent us to see Dr. Hosking at BC Children’s Hospital.  Dr. Hosking was concerned about the results of a pulse oximetry test administered at Children’s, and ordered a CT scan.  It was during the CT scan that Jayda was found to have a pulmonary Arteriovenous malformation (AVM), and diagnosed with a rare heart condition called Hereditary Hemorrhagic Telangiectasia (HHT), which is a genetic disorder that causes abnormalities of blood vessels.

Less then a month later Jayda underwent a procedure to fix the complex AVM in her lung.  Three months after her procedure she still wasn’t doing well and was referred to Dr. Laura Stewart to determine if there was an underlying endocrine condition.  It was here that Dr. Stewart diagnosed Jayda with Congenital Adrenal Hyperplasia, a condition where the body does not create the hormone cortisol that helps regulate blood sugar, cholesterol and blood pressure. 

Jayda was immediately started on a hormone replacement therapy and now takes medication daily to control this.  Both her cardiac and her adrenal condition are life threatening if not managed appropriately.

As recently as last week, Jayda underwent her second surgery for the complex AVM in her right lung.  Dr. Martin Hosking, Dr. Manraj Heran and Dr. Laura Stewart at BC Children’s Hospital have been instrumental in ensuring Jayda has had the best care possible. 

She is doing well now and I am so grateful to have such a wonderful facility in BC looking after our children. It’s because of an organization like BC Children’s Hospital Foundation that keeping such talented doctors here in BC is possible.

 

Kind Regards,

Tracy

Do you have a Children’s Hospital story? Share it with us by emailing stories@bcchf.ca.

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Entry filed under: At the Hospital, Terra.

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1 Comment Add your own

  • 1. Jen  |  December 3, 2009 at 5:05 pm

    What a wonderful story. Thank you so much for sharing. Jen

    Reply

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